The Barts Pancreas Tissue Bank (BPTB) is a dedicated research collaboration between clinicians, scientists and patients.
It will create a unique and vital resource for pancreas cancer tissue of all types for researchers across the whole world.
The Barts Pancreas Tissue Bank was founded based on the feedback given to a number of patients to the leading pancreatic cancer charity Pancreatic Cancer Research Fund (PCRF).
Patients and their relatives wanted to donate samples for cancer research but were unable to do so. There were questions being asked:
- Why couldn't my diagnosis have been made earlier?
- Is there a simple test to monitor if my cancer will come back?
- Is there some research being carried out by you to help future pancreatic cancer patients?
- How can I help research at your hospital?
- Can you develop a test that will ensure my children do not face the same future and uncertainty I am facing?
- Why is there nothing being done to help me and my family in the future?
Barts Pancreas Tissue Bank has been used to model and tests systems for the national collaborative venture: Pancreatic Cancer Research Fund Tissue Bank
This Research Tissue Bank is thus a unique research resource where patients and their relatives can donate their samples in a well-established, efficient manner.
The samples will be collected and stored with written informed consent based on an ethically approved protocol. This protocol will be under constant review.
Queen Mary University of London is the sponsor for this study based in the United Kingdom. We will be using information from your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. Queen Mary University of London will keep identifiable information about you for 20 years after the study has finished.
Your rights to access change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
You can find out more about how we use your information at http://www.jrmo.org.uk.
HTA research license no: 12199